NY1 Raises Money, Awareness For Rare Chromosome Disorder
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NY1 employees were out in force last night for a charity fundraiser at the Chelsea Art Museum.
The "Don't Stop Believin" benefit was inspired by the story of Dylan Rabinovich, whose mom, Melissa, is an executive producer at NY1.
Dylan was diagnosed with a chromosome disorder called Emanuel Syndrome – which is so rare that Dylan's is the only case in New York City.
Last night's black tie event raised money for Chromosome 22 Central. Its founder says she was inspired when her now 13-year-old daughter was diagnosed with Emanuel Syndrome.
"It started with 17 families and from there we went on, and it started me on an amazing journey," said Chromosome 22 Central Founder Stephanie St. Pierre. "I've met so many amazing people who've become part of my family. The proceeds of tonight's benefit will go towards bringing more families together. It's probably difficult for you to understand why it's so important. People will go to the ends of the earth to meet someone else who has a child with the same diagnosis."
To learn more about Chromosome 22, go to c22c.org.
Or, to make a donation, send a check to Chromosome 22 Central, 6 Buttonwood Avenue, Staten Island, New York, 10304.